PEM and Pacing for the Pediatric Patient Dr Katherine Rowe











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Welcome to the final installment in our four-part series focusing on post-exertional malaise (PEM) created by MEAction and Patient-led Research Collaborative. Dr. Katherine Rowe joins us to discuss PEM and Pacing for the Pediatric Patient. • Dr. Katherine Rowe is a consultant paediatrician at the University of Melbourne Royal Children's Hospital, Victoria, Australia, and an expert in the area of ME/CFS and the relationship between health and education. Dr. Rowe was one of the authors of the 2017 Pediatric Primer published in Frontiers in Pediatrics. • Each video is an interview with an expert in the field and is conducted by Chimére L. Sweeney*, a Long COVID author, speaker, filmmaker, and writer. We will be sharing a new video each Monday in September and they will be tagged #MedEdMonday. • PEM is a flare of symptoms and/or the appearance of new symptoms after exertion, often presenting 24 hours after the triggering event. Physical activity, cognitive overexertion and sensory overload can all trigger PEM. Post-exertional malaise is a unique symptom, incongruent with experiences of fatigue after overexertion in healthy individuals. It is not the same as being more tired than normal after activity. • *Important Reminder* • Activity management in severe patients can be very challenging, since even activities like eating or brushing teeth may lead to a crash. Pacing advice should lean towards radical rest. Pacing advice might include things like using blended food to help save the energy from attempting to chew or using alternatives for toileting. • Helpful resource: • Pediatric Pacing Guide created by MEAction and Long Covid Families: https://www.meaction.net/wp-content/u... • #pwME #pediatric #MECFS #LongCovid

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