SanfilippoMPS The road to diagnosis

>> YOUR LINK HERE: ___ http://youtube.com/watch?v=1Qu5ctrwjwU

The mom of a girl diagnosed with Sanfilippo describes the long journey to her diagnosis beginning at age 2. I knew as soon as I read the description that that was what she had. . . . The doctor told us to go home and enjoy her. There was no treatment or cure that we could do at that point. • • Sanfilippo/MPS: The road to diagnosis. • If your child has Sanfilippo or another pediatric life threatening illness, this mom shares her perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.

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