What is Dravet Syndrome and what should you know about this rare epilepsy

>> YOUR LINK HERE: ___ http://youtube.com/watch?v=9c0bTGPqOvg

This month’s Epilepsy Explained features Dr. Julie Ziobro, Pediatric Epileptologist at University of Michigan Health, and focuses on Dravet Syndrome, a rare epilepsy syndrome that occurs in early infancy or childhood. Dr. Ziobro explains what causes Dravet Syndrome, how it presents and is diagnosed, the long-term prognosis for those with Dravet, and talks about promising research being conducted on Dravet Syndrome. She also explains why it’s important for those with Dravet to have a seizure action plan and what should be included in that plan. In “Dravet Syndrome Explained”, Dr. Ziobro answers the following questions. • 0:00 Intro • 0:16 What is Dravet Syndrome and what causes it? • 0:47 What are the symptoms of Dravet Syndrome and how is it diagnosed? • 1:48 Are there certain medications or treatments that are prescribed for those with Dravet Syndrome? • 2:59 What should be included in a seizure action plan for a person with Dravet Syndrome? • 3:55 Are there impacts or comorbidities in addition to seizures that those with Dravet Syndrome my experience? • 4:33 What is the long-term prognosis for those diagnosed with Dravet Syndrome? • 6:01 Is there any promising research being conducted on Dravet Syndrome? • Look for new episodes of Epilepsy Explained on the third Wednesday of every month on CURE Epilepsy’s YouTube Channel and on our website at: https://www.cureepilepsy.org/epilepsy... • If you would like to submit questions for future episodes of Epilepsy Explained, please go to: https://www.cureepilepsy.org/epilepsy... • ABOUT CURE EPILEPSY • CURE Epilepsy is the leading, non-governmental funder of epilepsy research. Since its inception in 1998, CURE Epilepsy has raised more than $100 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy funds grants for young and established investigators and to–date has awarded more than 300 cutting-edge projects in 18 countries around the world. Our mission is to fund breakthrough research that will transform the lives of people living with epilepsy as we lead the search for a cure. • LEARN MORE ABOUT EPILEPSY • Visit the “Understanding Epilepsy” section of CURE Epilepsy’s website: • https://www.cureepilepsy.org/for-pati... • STAY CONNECTED WITH CURE EPILEPSY • Sign up for our newsletter for the latest in epilepsy research news: https://www.cureepilepsy.org/subscribe/ • Follow us on Facebook: / cureforepilepsy • Follow us on Twitter: / cureepilepsy • Follow us on Instagram: / cureepilepsy • INCREASE YOUR IMPACT • Share your story: https://www.cureepilepsy.org/personal... • Help us find a cure: https://www.cureepilepsy.org/get-invo...

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