Connections
YOUR LINK HERE:
http://youtube.com/watch?v=A7MR3Jko17w
In this film, a collaboration between the Timothy Syndrome Alliance (TSA) and Cardiff University, we explore the importance of connections between individuals and families with lived experience of CACNA1C-related disorders (CRDs) and Timothy Syndrome (TS), academics, clinical teams and researchers. The more links we make, the stronger our network becomes and the faster we grow our understanding of our rare disease. Without connections, we can't grow or learn. • #CACNA1C #TimothySyndrome #LongQT8 #RareDiseases #Awareness #Research #StrongerTogether #RareDisease
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