Patient amp Public Involvement NIHR Demm Comm Workshop

>> YOUR LINK HERE: ___ http://youtube.com/watch?v=F2w-22iUcew

This film is the recording of a webinar delivered as part of the NIHR Demm Comm Fellowship Training Programme. Watch to hear about the importance Patient Public Involvement in Research, and to hear from people living with dementia and carers who discuss their involevement in research, and what they feel it is important for Researchers to know when seeking their views on research. • 00:00:00 Introductions • 00:01:32 Introduction to PPI - Anna Smith - Alzheimer's Society • 00:08:37 How should researchers explain study involvement • 00:18:00 How can research support the public to get involved in research • 00:29:29 Examples of Patient and Public Involvement in Research • 00:40:20 How much time and input is appropriate to give into research • 00:51:03 Feedback from group discussion • We hear from: • Kevin Quaid, Vice-Chairperson of the European Working Group of People with Dementia. • Michael Booth, PRC Committee Member Member of the Alzheimer's Society Research Network Voluneer Group. • Helen Bundy Medsger, Vice-Chaorperson of the Global Brain Health Institute (GHBI) • Javed Rehman, Chai of Bridging Communities • John O'Doherty, Governance Board Member of Dementia United GM-ICP • Anna-Louise Smith, Associate Director of Evidence and Involvement • Hosted by Dr Sarah Fox • -- • Dem Comm is a 3.5 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. • It aims to produce the new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence base in dementia care, clinical research and social sciences. • This playlist brings together recordsing from the various workshops and online training seminars delivery for and by the NIHR Demm Comm Fellows so that others may take advantage of the resources. • ARC Wessex is the Dem Comm coordinating centre for this programme is led by Dr Ruth Bartlett who has devised a bespoke training programme for more than 50 Dem Comm research fellows. • For more information visit: • https://www.arc-wx.nihr.ac.uk/dem-com... • Dementia Researcher is proud to be a partner in supporting delivery of the programme. • Follow us on Social Media: • / dementia_researcher • / dementia.researcher • #PatientandPublicInvolvement #dementiaresearch #dementiacare #PPI #ppitutorial ‪@alzheimerssociety‬ ‪@NIHRtv‬

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