Youtor
Young and living with HeFH how do we manage it
>> YOUR LINK HERE: ___ http://youtube.com/watch?v=LTr5mV3F1xg
Join us as we discuss Heterozygous Familial Hypercholesterolaemia (HeFH), the common form of FH. Globally 1 in 300 people have HeFH, yet only 10% have been identified, emphasising the importance for early screening and management for children. Two of our patient ambassadors share personal experiences - Lena Rosa, a young person living with HeFH, and Sabina, a mother of three girls, two diagnosed with HeFH. They, along with Professor Albert Wiegman highlight the need for awareness, dietary management, and medication adherence. The session advocates for better education and support for families to ensure healthier futures for those affected by Familial Hypercholesterolaemia. • More information: • FH Awareness Day (https://fhef.org/fh-awareness-day/) • Other HeFH related videos: • • Misdiagnosis and Gender Bias in Women... • Recent articles and papers released: • https://fheurope.sharepoint.com/:b:/s... • https://fheurope.sharepoint.com/:b:/s... • https://fheurope.sharepoint.com/:b:/s... • https://fheurope.sharepoint.com/:b:/s... • https://fheurope.sharepoint.com/:b:/s... • https://fheurope.sharepoint.com/:b:/s... • Webinars from FH Europe Foundation: • Annual Network Meeting 2023: https://fhef.org/anm2023/ • FH Europe Network Annual Meeting 2022: https://fheurope.org/latest-news/annu... • Post-Annual Meeting 2022: https://fheurope.org/latest-news/post...
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