Youtor
quotThings look normalquot EPP amp XLP are MyPorphyria
>> YOUR LINK HERE: ___ http://youtube.com/watch?v=btNNYvvVB2k
From painful reactions to sunlight to long delays in diagnosis, living in the shadows is a reality when you have Erythropoietic Protoporphyria (EPP) and X-Linked Protoporphyria (XLP). • Hear from EPP and XLP patients from around the world about what it's like to live in their skin. • The #MyPorphyria campaign goes beyond the list of symptoms to highlight the realities of living with #porphyria. Check out other patients' stories and learn how you can get involved by visiting our website.
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