CDKL5 and Us
YOUR LINK HERE:
http://youtube.com/watch?v=nwOjS-XH1WM
Here is a video on the rare devistating disorder our daughter suffers from. CDKL5 is such a new diagnosis the name is named after the gene that has the mutation/deletion. It is commonly linked with Rett syndrome. • CDKL5 can cause seizures, global delays, visual impairments, lack of communication skills, minimal if any hand control, etc. • Help us fight against CDKL5 by helping us raise money to start much needed research to stop CDKL5 in its tracks! • Song is Your Hands by JJ Heller • Please visit http://cdkl5.com/ to learn more about CDKL5
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