Youtor
Frontotemporal Dementia Causes Signs and Symptoms Diagnosis and Treatment
YOUR LINK HERE:
http://youtube.com/watch?v=o73Ls8iyVOQ
Our yearly interview with my dad, who has frontotemporal dementia. When he was diagnosed, he said he wanted to help other families dealing with this disease since there's way less out there about it than about Alzheimer's. We took him yearly to be interviewed by med students when he was still capable of it, so that they could learn from him. And we started doing the videos for two reasons: 1) so that other people - particularly med students (his neurologist teaches around the world and has used these videos in her lectures) - wondering how Frontotemporal Dementia progresses can see it, and 2) so that his friends who lived far away could see how he was doing. • He tends to perk up and get a little clearer when the video camera is on him. I think it's the old performer in him. The day before, he didn't know the answers to most of the questions I asked him in this video. The fact that he'd heard and sang along to music immediately prior to the videotaping also helped stimulate his brain, I think, making him more with it. If you look at the previous videos from the last 2 years, you'll see some consistency and some decline in his answers. He has gotten a lot less verbal, but he still loves to sing. I tried to shoot the videos at roughly the same time of day since he tends to be sharpest around lunch. This is about 6 years after he was diagnosed (though I think we saw signs all the way back in 2006 - we just didn't know what it was). You can see the prior year's interview at https://www.youtube.com/watch?v=F7C1u... and the following year's interview at https://www.youtube.com/watch?v=E09ag... • I have published a book called Fractured Memories: Because Demented People Need Love, Too. It features 40 paintings and recounts my family's hilarious and heartbreaking journey through my dad's dementia. I’m hoping it’ll help remind everyone - not just caregivers or people with loved ones who suffer from dementia – to look for the laughter hiding amidst the pain. You can find paintings from the book at http://shop.emilypageart.com/products..., and the book itself on Amazon: https://www.amazon.com/Fractured-Memo...
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