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Although a gastrostomy (G tube) or gastrojejunostomy (GJ tube) is considered a safe and effective medical device, the decision to proceed with its placement for your child may be a difficult one for you. Five families have shared their experiences with the hope that their stories help you with your decision. • These instructions are part of a teaching program for families of patients at The Hospital for Sick Children. They are provided in addition to detailed hands-on training. We urge you not to follow these instructions without training and advice from a healthcare professional who understands your child’s unique needs. Please also review these instructions with your doctor to check if they are suitable for your situation. • Subscribe to the AboutKidsHealth YouTube channel: http://ow.ly/CzrN50ClHN3 • #GTube • #GJTube • #GTubeFeeding • Please visit https://www.aboutkidshealth.ca/tubefe... for more information on G Tubes. • Follow us on: • Facebook: / aboutkidshealth • Twitter: / aboutkidshealth • Pinterest: / aboutkidshealth • VIDEO CHAPTERS • 00:00 - G or GJ Tubes- Making the decision • 02:04 - Emily, 18 months old. G tube at 9.5 months old • 02:17 - Shruthi, 18 months old. GJ tube at 7.5 months old • 02:25 - Nevaeh, 6 years old. G tube at 5.5 months old • 02:35 - Andrew, 12 years old. G tube at 11 months old • 02:47 - Savanna, 13 years old. G tube at 13 years old • 03:00 - Understanding why a child might benefit from a G or GJ tube placement. To make a fully informed decision, make sure you know the reason why your child's health-care team has recommended one • 03:53 - Making your decision. It is often difficult for parents to make a decision about a G or GJ tube. Resources are available to help you feel confident about your decision • 07:44 - Learning how to care for a G or GJ tube. The idea of caring for a G tube may be frightening. You will be given education, guidance and resources to look after your child's G or GJ tube well • 08:53 - Challenges. Looking after your child's G or GJ tube can be time-consuming. Caring for the G or GJ tube and the skin around it is generally simple, but complications can still happen • 00:11:38 - Support. You are not alone. Your child's healthcare team, community care organizations and other families who have been through the experience, will support you • 00:12:37 - Supplies and Funding for a G tube. You may feel more confident in your decision if you know what supplies you will need, how much they will cost, were to get them and how to look after them • 00:13:15 - Adjusting and benefits to a G tube. Caring for a child with a feeding tube can affect your families lifestyle, especially when you get used to the changes. It may seem overwhelming at first • 00:15:32 - Social life and travel with a G tube. You may worry about how having a G or GJ tube will affect your child's social life. Some families also worry about the inconvenience, isolation and the travel issues a G or GJ tube might bring • 00:17:44 - After the decision to get a G tube. A decision to get a feeding tube for your child is personal, but it is often helpful to hear how others managed through it, and if they felt they made the right decision • 00:20:53 - Final thoughts. Consider all the information and imagine how the decision for or against a G or GJ tube could affect your child and family. You and you child's team can decide what's best • 00:24:21 - Special thanks
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