EDS amp HSD QampA Ehlers Danlos Syndrome amp Hypermobility Spectrum Disorder Awareness Month











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Answering your questions on EDS HSD in honour of Ehlers Danlos Syndromes Hypermobility Spectrum Disorder Awareness Month • If you have any more questions please let us know in the comments! • Chapters: • 00:00-00:39 - Introduction • 00:39-01:36 - What is EDS and HSD? • 01:36-02:53 - What is the difference between HEDS, HSD and JHS? • 02:53-04:36 - How did you get your diagnosis of EDS? • 04:36-05:31 - Have you always had EDS? • 05:31-06:25 - How does this affect me? • 06:25-08:36 - What are the most common commonality complications? • 08:36-09:59 - What types of pain do you feel and how do you describe them? • 09:59-11:30 - What are your top EDS hacks? • 11:30- 14:26- What is your best advice for someone who has been newly diagnosed? • 14:26- 17:27 - How do you explain EDS to those around you? • 17:27-19:08 - How can I support someone with EDS? • 19:08-20:49 - What should I do if I think I might have EDS or HSD? • 20:49-21:22- Can you have EDS or HSD without subluxation or dislocation? • 21:22-22:58- Where can I find support as someone with EDS or HSD? • 23:00-23:48- Conclusion • You can also find me on other social media: • Instagram: / chronicallyjenni • Facebook: / chronicallyjenni • My Support Group: / 785786465114178 • Email: [email protected] • Blog: https://www.chronicallyjenni.com • Amazon Store: https://www.amazon.co.uk/shop/chronic... • • Ehlers Danlos - https://www.ehlers-danlos.org/ • PoTS UK - https://www.potsuk.org/ • MCAS - https://www.mastcellaction.org/

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