youtor.org
quotSometimes my body would shake from painquot HCP amp VP are MyPorphyria
>> YOUR LINK HERE: ___ http://youtube.com/watch?v=pr07SZT0JGk
From sudden attacks of severe pain and paralysis, sensitivity to sunlight and heat, navigating life with two rare types of porphyria- Hereditary Coproporphyria (HCP) and Variegate Porphyria (VP)- can be exhausting. • Hear from HCP and VP patients from around the world about what it's like to live with their porphyria. • The #MyPorphyria campaign goes beyond the list of symptoms to highlight the realities of living with #porphyria. Check out other patients' stories and learn how you can get involved by visiting our website.
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